{"id":3761,"date":"2022-02-07T15:39:17","date_gmt":"2022-02-07T23:39:17","guid":{"rendered":"http:\/\/localhost:10124\/?p=3761"},"modified":"2022-02-19T11:20:10","modified_gmt":"2022-02-19T19:20:10","slug":"parent-experience-with-housing-supports-for-adult-autistics","status":"publish","type":"post","link":"https:\/\/aascend.org\/?p=3761","title":{"rendered":"Parents\u2019 Experience with Housing &#038; Supports for Autistic Adults"},"content":{"rendered":"\n<p class=\"wp-block-paragraph\">Here is a <a href=\"https:\/\/us02web.zoom.us\/rec\/share\/DVJsAphpmLbREeXjc7LLPeAsg4Nh44iutSuP5SNtOgqMuFoROk2t-4-Pz6NP6OEG.kLlwOgcH3m4ZpQwS\">link<\/a> to a video recording of Mary Nisson&#8217;s February 19 presentation.<\/p>\n\n\n\n<p class=\"wp-block-paragraph\">Here is the <a style=\"font-weight: bold;\" href=\"https:\/\/ddfpplanning.wixsite.com\/ddfp-ca\">DDFP-CA<\/a> website.<\/p>\n\n\n\n<p class=\"wp-block-paragraph\">Here is an email address to contact Mary:<strong><a href=\"mailto:ddfp.planning@gmail.com\"> Contact<\/a><\/strong><\/p>\n\n\n\n<hr class=\"wp-block-separator\"\/>\n\n\n\n<p class=\"wp-block-paragraph\"><mark style=\"background-color:rgba(0, 0, 0, 0)\" class=\"has-inline-color has-vivid-purple-color\"><em>The <\/em><\/mark><strong><em><mark style=\"background-color:rgba(0, 0, 0, 0)\" class=\"has-inline-color has-vivid-red-color\">Stanford Neurodiversity Project<\/mark><\/em><\/strong><mark style=\"background-color:rgba(0, 0, 0, 0)\" class=\"has-inline-color has-vivid-purple-color\"><em> needs you! If you are 18+, with a diagnosis of ADHD, Dyslexia or Autism, OR if you have served as a vocational training instructor for neurodiverse individuals, AND you are willing to take a 5-15 minute survey, please see below for details.<\/em><\/mark><\/p>\n\n\n\n<hr class=\"wp-block-separator\"\/>\n\n\n\n<p class=\"wp-block-paragraph\">On February 19 <span style=\"color: #ff0000;\"><strong>A<\/strong><\/span><span style=\"color: #ff6600;\"><strong>A<\/strong><\/span><span style=\"color: #ff9900;\"><strong>S<\/strong><\/span><span style=\"color: #008000;\"><strong>C<\/strong><\/span><span style=\"color: #33cccc;\"><strong>E<\/strong><\/span><span style=\"color: #3366ff;\"><strong>N<\/strong><\/span><span style=\"color: #993366;\"><strong>D<\/strong><\/span> will explore the ins and outs of housing and supports for autistic adults requiring high levels of support. <strong><mark style=\"background-color:rgba(0, 0, 0, 0);color: #ff0000;\" class=\"has-inline-color\">Mary Nisson<\/mark><\/strong> will describe her own experience as a parent, and her work in forming the <strong>Developmental Disability Future Planning Group of California<\/strong> \u2014 <a href=\"https:\/\/ddfpplanning.wixsite.com\/ddfp-ca\"><strong>DDFP-CA<\/strong><\/a>, also on <a href=\"https:\/\/www.facebook.com\/groups\/623886315484843\">Facebook<\/a> \u2014 created in response to the statewide crisis caused by the dearth of supported living situations for adults with intellectual disabilities and\/or developmental disabilities. The group specifically helps other families troubleshoot together the complicated process of completing their <strong><mark style=\"background-color:rgba(0, 0, 0, 0);color: red;\" class=\"has-inline-color\">Caregiver Succession Plans<\/mark><\/strong> and <strong><mark style=\"background-color:rgba(0, 0, 0, 0);color: red;\" class=\"has-inline-color\">Independent Living Arrangements.<\/mark><\/strong><\/p>\n\n\n\n<p class=\"wp-block-paragraph\"><strong><mark style=\"background-color:rgba(0, 0, 0, 0);color:#624800\" class=\"has-inline-color\">The Zoom meeting URL and password will be sent to people on our email list as the date approaches. <strong><em>No registration is necessary.<\/em><\/strong><\/mark><\/strong> <strong><mark style=\"background-color:rgba(0, 0, 0, 0);color:#624800\" class=\"has-inline-color\">If you are not on <\/mark><mark style=\"background-color:rgba(0, 0, 0, 0);color:#614700\" class=\"has-inline-color\">our email list, click<\/mark>&nbsp;<a href=\"mailto:ddfp.planning@gmail.com\">here<\/a>&nbsp;<mark style=\"background-color:rgba(0, 0, 0, 0);color:#644a01\" class=\"has-inline-color\">to sign up.&nbsp;<\/mark><\/strong><\/p>\n\n\n\n<div class=\"wp-block-image\"><figure class=\"aligncenter size-full\"><img loading=\"lazy\" decoding=\"async\" width=\"450\" height=\"297\" src=\"http:\/\/aascend.org\/wp-content\/uploads\/2022\/02\/David-Mary-UCD-1.jpg\" alt=\"\" class=\"wp-image-3756\" srcset=\"https:\/\/aascend.org\/wp-content\/uploads\/2022\/02\/David-Mary-UCD-1.jpg 450w, https:\/\/aascend.org\/wp-content\/uploads\/2022\/02\/David-Mary-UCD-1-300x198.jpg 300w\" sizes=\"auto, (max-width: 450px) 100vw, 450px\" \/><\/figure><\/div>\n\n\n\n<p class=\"wp-block-paragraph\"><strong><span style=\"color: red;\" class=\"has-inline-color\">Mary Nisson<\/span> <\/strong>is the 61-year-old parent of 33-year-old autistic AASCEND member, <strong><span style=\"color: red;\" class=\"has-inline-color\">David Nisson,<\/span><\/strong> pictured here with Mary. David&#8217;s profound level of autism requires that he receive 24\/7 protective supervision (1:1 staffing ratio), so his Home and Community Based adult living arrangement requires Supported Living Services (SLS), rather than Independent Living Services (ILS). Mary exhausted her financial, emotional and other resources collaborating with David and his agencies in the struggle to obtain for him an affordable, yet desirable, independent SLS living arrangement in their housing-limited hometown of Davis, Yolo County, California. In the process she and David learned how fortunate they were to succeed in this goal, and that our nation suffers from a &#8220;perfect storm crisis&#8221; of families suffering roadblocks to completing their Caregiver Succession Plans and Independent Living Arrangements. This often leaves adults with autism and similar disabilities without living arrangements when their parents die. So, Mary has started the Developmental Disability Future Planning Group (DDFP) to help other families troubleshoot together this complicated process.<\/p>\n\n\n\n<p class=\"wp-block-paragraph\">As usual at AASCEND meetings,&nbsp;<strong><span style=\"color:#016440\" class=\"has-inline-color\">attendees on the autism spectrum will offer their experience and perspectives throughout the program.<\/span><\/strong><\/p>\n\n\n\n<p class=\"has-text-align-center wp-block-paragraph\"><strong><mark style=\"background-color:rgba(0, 0, 0, 0)\" class=\"has-inline-color has-luminous-vivid-orange-color\">Parent, caregiver or autistic&#8230;all are welcome. We hope to see you there!<\/mark><\/strong><\/p>\n\n\n\n<p class=\"wp-block-paragraph\"><strong>Who: Adults on the spectrum, family, professionals and friends all welcome!<\/strong><\/p>\n\n\n\n<p class=\"wp-block-paragraph\"><strong>When:<mark style=\"background-color:rgba(0, 0, 0, 0)\" class=\"has-inline-color has-vivid-red-color\"> Saturday, Feb 19, 2022 10 &#8211; 11 am<code> (approx)<\/code><\/mark><\/strong><\/p>\n\n\n\n<p class=\"wp-block-paragraph\"><b>Where: <\/b><font color=\"#cf2e2e\"><span style=\"caret-color: rgb(207, 46, 46); font-weight: 600;\">Online<\/span><\/font><span class=\"has-inline-color has-vivid-red-color\" style=\"font-weight: bold;\"> via Zoom,<\/span><b> <em>URL and password will be emailed.<\/em><\/b><\/p>\n\n\n\n<hr class=\"wp-block-separator\"\/>\n\n\n\n<p class=\"wp-block-paragraph\"><mark style=\"background-color:rgba(0, 0, 0, 0)\" class=\"has-inline-color has-vivid-purple-color\">The<\/mark> <strong><mark style=\"background-color:rgba(0, 0, 0, 0)\" class=\"has-inline-color has-vivid-red-color\">Stanford Neurodiversity Project<\/mark><\/strong> <mark style=\"background-color:rgba(0, 0, 0, 0)\" class=\"has-inline-color has-vivid-purple-color\">is conducting a study on relationships between vocational training and employability and employment metrics in neurodiverse\/neurodivergent individuals.<\/mark>\u00a0<\/p>\n\n\n\n<p class=\"wp-block-paragraph\">We are looking for adults<strong> at least 18 years of age <\/strong>who either:<\/p>\n\n\n\n<ol class=\"wp-block-list\"><li>Have a documented diagnosis of ADHD, Dyslexia, or Autism<\/li><li>OR serves or previously served as a vocational training instructor for neurodiverse\/neurodivergent individuals<\/li><\/ol>\n\n\n\n<p class=\"wp-block-paragraph\"><strong>Participation in the study will involve:<\/strong><\/p>\n\n\n\n<ol class=\"wp-block-list\"><li>Completion of an online consent form<\/li><li>Completion of a 5-15 minute online survey questionnaire<\/li><\/ol>\n\n\n\n<p class=\"wp-block-paragraph\"><strong>Benefits of participating:<\/strong><\/p>\n\n\n\n<ul class=\"wp-block-list\"><li>May help benefit vocational training and\/or employment of neurodiverse\/neurodivergent individuals<\/li><\/ul>\n\n\n\n<p class=\"wp-block-paragraph\"><strong>To enroll in this study, please go to<\/strong><a href=\"https:\/\/redcap.link\/ajm4y4bo\"><strong> <\/strong><strong>https:\/\/redcap.link\/ajm4y4bo<\/strong><\/a><\/p>\n\n\n\n<p class=\"wp-block-paragraph\">For more information, please email stanfordneurodiversityproject@stanford.edu or call (650) 498-9392<\/p>\n\n\n\n<p class=\"wp-block-paragraph\">For participant\u2019s rights questions, contact 1-866-680-2906<\/p>\n","protected":false},"excerpt":{"rendered":"<p>Here is a link to a video recording of Mary Nisson&#8217;s February 19 presentation. Here is the DDFP-CA website. Here is an email address to contact Mary: Contact The Stanford Neurodiversity Project needs you! If you are 18+, with a &hellip; <a href=\"https:\/\/aascend.org\/?p=3761\">Continue reading <span class=\"meta-nav\">&rarr;<\/span><\/a><\/p>\n","protected":false},"author":5,"featured_media":0,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"footnotes":""},"categories":[1],"tags":[],"class_list":["post-3761","post","type-post","status-publish","format-standard","hentry","category-uncategorized"],"_links":{"self":[{"href":"https:\/\/aascend.org\/index.php?rest_route=\/wp\/v2\/posts\/3761","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/aascend.org\/index.php?rest_route=\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/aascend.org\/index.php?rest_route=\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/aascend.org\/index.php?rest_route=\/wp\/v2\/users\/5"}],"replies":[{"embeddable":true,"href":"https:\/\/aascend.org\/index.php?rest_route=%2Fwp%2Fv2%2Fcomments&post=3761"}],"version-history":[{"count":0,"href":"https:\/\/aascend.org\/index.php?rest_route=\/wp\/v2\/posts\/3761\/revisions"}],"wp:attachment":[{"href":"https:\/\/aascend.org\/index.php?rest_route=%2Fwp%2Fv2%2Fmedia&parent=3761"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/aascend.org\/index.php?rest_route=%2Fwp%2Fv2%2Fcategories&post=3761"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/aascend.org\/index.php?rest_route=%2Fwp%2Fv2%2Ftags&post=3761"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}